Pauline Court: Living with Dystonia and trying to plan a future.
ENTRY 1: Life's lessons Life has taught me many lessons over the years and one thing I have learnt is not to care about what anyone else thinks about you in this non sensical social media world. So many people are plastering pictures of how 'perfect' their lives are all over the internet. That's not me. My life is (or has ever been) by no means any where near those idealized images of perfection. So straight into it . . . I had DBS brain surgery in November 2019 for my Dystonia and it was successful for a number of years. However, in the last 18 months, the Dystonia spread to the other side of my brain. I am now on the wait list for more brain surgery, as I am once again walking with crutches. Such is life. At least I got to enjoy walking again for a few years. I am forever the optimist and I am hoping the surgery will allow me to walk again, unaided by crutches. It is worth the risks involved if it gives me my active life back again. I used to be a runner, well may...