Posts

Living My Best Life in Cyprus and Managing My Constant Companion, Dystonia.

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Entry 1: Yes, I did it!! Screw you, Dystonia! YAY!!! I finally made it here and F you Dystonia and the NZ health system. This has been such an unimaginable journey to get here but, man, can I say it was so worth it. Saying that, I would not wish the torrential track I trudged through to get here, on my own worst enemy.  However, new journey now and new life! If you want to learn more about my previous journey, please feel free to read my other blog, Living with Dystonia and trying to plan a future. Anyone, wanting to change their life with a chronic condition, or any other life changing moment or condition, please do not let it swallow you up and consume your identity. Fear is a huge factor when it comes to change because consistency and regular habits are comforting and safe. I get that. Until I met Martin, I was completely regimented in my approach to and outlook on life and had been so brain washed about NZ and what an awesome country it is. And, it is in many ways. I am not dis...

Pauline Court: Living with Dystonia and trying to plan a future.

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  ENTRY 1: Life's lessons Life has taught me many lessons over the years and one thing I have learnt is not to care  about what anyone else thinks about you in this non sensical social media world. So many people are plastering pictures of how 'perfect' their lives are all over the internet. That's not me. My life is (or has ever been) by no means any where near those idealized images of perfection. So straight into it . . . I had DBS brain surgery in November 2019 for my Dystonia and it was successful for a number of years. However, in the last 18 months, the Dystonia spread to the other side of my brain. I am now on the wait list for more brain surgery, as I am once again walking with crutches. Such is life. At least I got to enjoy walking again for a few years. I am forever the optimist and I am hoping the surgery will allow me to walk again, unaided by crutches. It is worth the risks involved if it gives me my active life back again.  I used to be a runner, well may...